I just got off the phone with Sarah. Today she met with a Sarcoma Specialist at the Huntsman Clinic. Since her diagnosis was GIST from McKay Dee and Sarcomatoid Mesothelioma from the Mayo Clinic - The Huntsman Clinic would like to do some of their own testing. Dr. Gouw is certain that she does have a Sarcoma cancer but thinks there may be a possibility it could be Sarcoma Synovial. This cancer travels through the whole body and so she would have to do Chemo and lose her hair. But this is a little less rare than the Mesothelioma so they would know better how to treat it. I guess the Sarcomatoid Mesothelioma only has 25 documented cases since 1950 so the treatments for that are considered a little experimental. They are going to test her for a specific gene and if she has it - the diagnosis will be the Synovial cancer. They are also going to do a PET scan at the end of this week that will detect areas of increased metabolic activity (cancerous tissue is very metabolically active) to see if the cancer has spread elsewhere. Then, she'll get all the test results and meet with Dr. Gouw again to go over her options (around the 2nd week of June).
She sends her gratitude to everyone. She's feeling very loved and taken care of. A special thanks to my brother-in-law Dr. Pulsipher who helped get the ball rolling at the Huntsman Clinic.